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FDA approves first treatment for Rett Syndrome | FDA
https://www.fda.gov/drugs/news-events-human-drugs/fda-approves-first-treatment-rett-syndrome
WEBFDA has approved Daybue (trofinetide) oral solution as the first treatment for Rett syndrome, a rare, genetic neurological disorder. Daybue is approved for the treatment of Rett syndrome...
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Rett syndrome - Diagnosis & treatment - Mayo Clinic
https://www.mayoclinic.org/diseases-conditions/rett-syndrome/diagnosis-treatment/drc-20377233
WEBMay 3, 2022 · Although there is no cure for Rett syndrome, treatments address symptoms and provide support. These may improve the potential for movement, communication and social participation. The need for treatment and support doesn't end as children become older — it's usually necessary throughout life.
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What are the treatments for Rett syndrome? - NICHD
https://www.nichd.nih.gov/health/topics/rett/conditioninfo/treatments
WEBMay 10, 2012 · These treatments, forms of assistance, and options for medication generally aim to slow the loss of abilities, improve or preserve movement, and encourage communication and social contact. A list of treatment options is presented below; the need for these treatments depends on the severity of different symptoms. 2, 3, 4.
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Rett Syndrome: What is it, Causes, Symptoms & Treatment - Cleveland Clinic
https://my.clevelandclinic.org/health/diseases/6089-rett-syndrome
WEBHow is Rett syndrome treated? Rett syndrome treatment varies based on specific symptoms. For example, children who have seizures may take antiseizure medications. For difficulty with motor skills and language, children may benefit from: Occupational therapy. Physical therapy. Speech therapy. Your child may need care from other specialists, …
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Rett Syndrome - National Institute of Neurological Disorders and Stroke
https://www.ninds.nih.gov/health-information/disorders/rett-syndrome
WEBNov 28, 2023 · While there is no cure for Rett syndrome, in 2023, the U.S. Food and Drug Administration (FDA) approved a new drug, Trofinetide, to treat Rett syndrome in children age two and older. Trofinetide works by reducing swelling in the brain, increasing the amount of a protective protein in the brain, and stopping some cells from becoming too …
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Rett Syndrome - Symptoms, Causes, Treatment | NORD
https://rarediseases.org/rare-diseases/rett-syndrome/
WEBMar 15, 2023 · Disease Overview. Summary. Rett syndrome is a progressive neurodevelopmental disorder that almost exclusively affects females. Only in rare cases are males affected. Infants with Rett syndrome generally develop normally for about 7 to 18 months after birth.
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Rett syndrome - Symptoms & causes - Mayo Clinic
https://www.mayoclinic.org/diseases-conditions/rett-syndrome/symptoms-causes/syc-20377227
WEBMay 3, 2022 · Although there's no cure for Rett syndrome, potential treatments are being studied. Current treatment focuses on improving movement and communication, treating seizures, and providing care and support for children and …
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What is Rett syndrome?
https://www.rettsyndrome.org/about-rett-syndrome/what-is-rett-syndrome/
WEBLoss of muscle tone. Seizures or Rett “episodes” Scoliosis. Breathing issues. Sleep disturbances. Slowed rate of growth for head, feet and hands. Rett Syndrome CME Opportunities. For pediatricians, neurologists, or anyone involved in the treatment of patients with Rett syndrome.
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Homepage - International Rett Syndrome Foundation
https://www.rettsyndrome.org/
WEBOUR RESEARCH STRATEGY. Every 2 hours, a child is born with Rett syndrome. Get Involved. Join our mission to transform the lives of all those affected by Rett syndrome. Your support can help families thrive and accelerate research toward treatments and a cure. Give. More than 90 cents of every dollar supports our mission.
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About Rett Syndrome - International Rett Syndrome Foundation
https://www.rettsyndrome.org/about-rett-syndrome/
WEBAbout Rett Syndrome. Rett syndrome is a rare genetic neurological disorder that affects 1 in 10,000 females (and even more rarely in males) and begins to display itself in missed milestones or regression at 6-18 months. Rett syndrome leads to severe impairments, affecting nearly every aspect of life: ability to speak, walk, eat and breathe easily.
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